We take every opportunity we can to provide the public with information about the symptoms of brain tumours, including through information stands and social media. We're also working to improve awareness among healthcare professionals.
We give families of children diagnosed with a brain tumour grants of £500 to help cover some of the costs faced upon initial diagnosis, such as travelling to a far away hospital, car parking and food whilst away from home. To apply for a grant, please contact us for more information.
We've developed an information toolkit for families to direct them to the best online resources and connect them with charities and services that can help them locally.
We're working with service providers and charities in Norfolk to look at ways support can be improved for families with a child undergoing treatment for cancer.
We are committed to making every family feel that they are supported when and where they need to be - we are hoping to create a team of specialist workers and volunteers to support families emotionally and practically in their homes and at hospital. We are also working on a project to provide a more comforting environment for children and families attending chemotherapy clinics at the Norfolk & Norwich University Hospital.
We support research into childhood brain tumours and potential treatments - since 2017 we have donated almost £40,000 to research projects that will help children with brain tumours.
In 2018/19 we supported Prof. Andrew Peets team, based at Birmingham Children's Hospital, developing a technique to use MRI scanners to identify the aggressiveness of a brain tumour without invasive biopsy brain tumour, which may in turn help guide treatment.
Most recently we have supported research at Queen Mary University of London, a Brain Tumour Research Centre of Excellence, looking into potential treatments for brain tumours that affect children.